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An Infant's Rare Disease, And A Life-Saving Transplant

One year after Isabella's transplant, the Boutins released lanterns to honor the 16-year-old donor who gave Isabella a new
Courtesy of the Boutin family.
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One year after Isabella's transplant, the Boutins released lanterns to honor the 16-year-old donor who gave Isabella a new
One year after Isabella's transplant, the Boutins released lanterns to honor the 16-year-old donor who gave Isabella a new

http://www.vpr.net/audio/programs/84/2012/12/2012-1226-vermontedition.mp3

Courtney and Steve Boutin live in Fletcher. In 2009, they were ready to welcome their third daughter to the family. Addie was 6, Lily was 4 and Isabella was born in July of that year at Fletcher Allen Health Care in Burlington. In the three and half years since, the Boutins have learned what it's like to have a child with a rare and deadly disease, Urea Cycle Disorder, and how to survive the experience with a strong family intact. Courtney and Steve Boutin recently came to the VPR studio to tell Vermont Edition the story of how a liver transplant saved their toddler's life.

NOTES:

Photos of the Boutin family

Throughout Isabella's illness, Courtney Boutin kept a blog to inform and update friend and family about UCD and Bella's prognosis. Read Courtney's blog here.

Learn more about UCD through the National Urea Cycle Disorder Foundation

Jane Lindholm is the host, executive producer and creator of But Why: A Podcast For Curious Kids. In addition to her work on our international kids show, she produces special projects for Vermont Public. Until March 2021, she was host and editor of the award-winning Vermont Public program Vermont Edition.
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